Wednesday, November 9, 2011

My Prematurity Rant

I usually don't get caught up in "celebrity" stuff, but being Prematurity Awareness month I can't hold my tongue. 

Michelle Duggar (of the TLC show 19 Kids and Counting) is pregnant AGAIN.  She had her last baby at 25 weeks due to severe preeclampsia (read about her last pregnancy here).  She has an estimated 60% chance of developing that condition again with this pregnancy, to which the only cure is delivering her baby; so she has a 60% chance of having an extremely premature baby, who in turn has a high chance of not surviving, or suffering from life-long medical complications (read about extreme prematurity here). 


As you probably know, I had an extremely premature baby last year (at 24 weeks).  Doctors are still not positive why he came so early, but they think it was due to an infection of the amniotic fluid, or an incompetent cervix.  I had a surgical procedure to strengthen my cervix (I am currently 22 weeks preggo and holding strong!), and I am being monitored for any infections or signs of preterm labor.  In short, although I had one preemie, the odds are not in my favor of having another one (unlike the Duggar baby  machine).  I'm saying this to qualify myself as someone who can speak her 2 cents.

You may be asking "Why does it matter if she has another one?"  Well, for one thing, the nature of preeclampsia is so dangerous, that seeing as she already has 19 kids and 2 gandkids, it is an extreme risk to impose on herself and her unborn baby.  Along with the stress on the rest of the family that accompanies having a baby in intensive care, preemies as early as hers is likely to be have medical problems that last long after hospital discharge.  My son Jonathan, for example, is 16 months old and is still undergoing physical therapy; breathing treatments; brain MRIs every 6-12 months; and monthly vaccinations to protect him from a common cold virus (RSV).  And he is considered a 24-weeker miracle!  Many babies born before 28 weeks have all these problems but to a more debilitating degree.

In addition to the health risk to her and her baby, a preemie costs a lot of money.  I am sure the Duggars' insurance and money from their TV show is sufficient to pay any hospital bills, but taxpayers can still end up footing at least some of the bill  Any baby born below 1200 grams automatically qualifies for disability under SSI and receives Medicaid during and for up to a year after their hospital stay.  NICUs are expensive places:  Jonathan's total bill was over $1,000,000, and he was only there 4 months!  (I say "only" because there are many babies, some born later than him, who stay much longer).  If you continue to qualify for Medicaid after discharge (which baby Duggar may or may not), it pays for all medical treatments then, too.

In short, considering the tremendous burden she is putting on her body, plus the cost of having a preemie and the health risk she is running with her unborn baby I say why take a chance on having another unhealthy pregnancy and birth?  It is not fair to the baby, knowing that he or she may have to fight for their life for months in a hospital.  It isn't fair to ask your family to sacrifice and go through the horrible NICU experience again.  In some cases, having a preemie is preventable, even if that means you just don't get pregnant anymore.  Having a uterus does not mean you should use it!

Side note:  I realize there is a chance she will have a totally healthy pregnancy and carry full term, and I sincerely pray that is God's plan for her.  I know God can heal and accomplish things when doctors and statistics say it isn't possible.  That being said, I still believe in human responsibility and decision-making.  I could consider walking across I-4 as cars zoom by at 70 MPH and trust that God loves me and will care for me, but the chances of me getting hit and killed by a car are so good that I probably wouldn't take that chance.  God loves me so much that he gave me a functional brain with which to process such information and make the best decision I can.  I am thankful for that, and pray others would use their brains, too.

Thanks for letting me rant!

Thursday, October 20, 2011

20 Weeks Preggo!

Since the last blog post I have gotten more pregnant, yay!  I have seen the doctor probably 3 times since the last post, and each time everything looked great!  We are so encouraged that we will carry closer to full-term (if not all the way).  I guess I will have to post the obligatory belly picture soon since I am starting to show.  The baby is moving constantly, and I love to feel him or her kicking and squirming, and watching my belly jump around.  I can't help but think of Psalm 139:13-16 that say,

For you created my inmost being;
you knit me together in my mother’s womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
My frame was not hidden from you
when I was made in the secret place,
when I was woven together in the depths of the earth.
Your eyes saw my unformed body;
all the days ordained for me were written in your book
before one of them came to be.

It is so comforting to know that while we can see an imperfect picture of our baby on a sonogram, the Lord sees him or her perfectly, and is forming that little body inside of me; each day of his or her life is already known by Him.  Thank God nothing comes as a surprise to Him!

We go to the Maternal-Fetal doctor next Friday for yet another check up.  We haven not decided if we will find out the baby's gender, but getting ultrasounds every 2 weeks is making it very hard to hold out til March!  Once we hit 24 weeks preggo, I think the ultrasounds and doctor appts. are not going to be as frequent.  The goal is 40 weeks, but 23 weeks is when I went into preterm labor with Jonathan, so these upcoming weeks the doctors are going to be watching me and baby like hawks.

Speaking of baby J, today would have been his due date and first birthday!  Crazy that he is already 15 months old.  Like the Psalm above said, the Lord had each of his days ordained from conception, and although we weren't expecting J to come 16 weeks early, God was.  We thank Him every day for the mercy and faithfulness He showed us in the NICU, and even now.  Jonathan is the light of our lives and such a testimony to the power of prayer and the goodness of God.

Jonathan hanging out with Daddy on Little Gasparilla Island.

The weather has finally cooled off a little here, it is in the 50s outside right now, but it will warm up to the low 70s later.  I have a pumpkin cooking in the crock pot for some homemade whole wheat pumpkin muffins, no canned pumpkin in this house!  We'll see how those turn out (you can get the recipe here).  One thing is for sure: this Fall weather really makes me feel domestic!